Decisions should be driven by the best interest of the child.
Sponsoring Organizations: American Academy of Pediatrics and American College of Medical Genetics and GenomicsTarget Population: Primary care pediatric clinicians, geneticists, genetic counselors
Key points: To inform best practices, ethical issues of genetic testing and screening of children need to be considered in the context of the growing literature on the psychological and clinical effects of genetic testing and screening.
Recommendations: An accompanying technical report provides ethical explanations and empirical data to support the following recommendations regarding genetic testing and screening of minors (Genet Med 2013; 15:234):
Reviewing Author
DisclosuresGrant/Research SupportNIH Institutional Clinical and Translational Science Award; Agency for Healthcare Research and Quality National Center for Pediatric Practice Based Research Learning; Patient-Centered Outcomes Research Institute
Editorial BoardsCurrent Problems in Pediatric Adolescent Healthcare
Leadership Positions in Professional Societies College of Physicians of Philadelphia (Board of Trustees)
DisclosuresGrant/Research SupportNIH Institutional Clinical and Translational Science Award; Agency for Healthcare Research and Quality National Center for Pediatric Practice Based Research Learning; Patient-Centered Outcomes Research Institute
Editorial BoardsCurrent Problems in Pediatric Adolescent Healthcare
Leadership Positions in Professional Societies College of Physicians of Philadelphia (Board of Trustees)