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Psychological outcomes among parents of infants diagnosed with congenital heart disease (CHD) have not been well explored. In this prospective pilot study conducted at a single hospital in Wisconsin, investigators compared psychological functioning in parents of infants with a prenatal diagnosis of CHD and parents of infants diagnosed at birth.
Ten of 11 families with infants who had a prenatal diagnosis of CHD participated in the study; 8 infants had severe CHD. In contrast, only 7 of 16 families with newborns who received a CHD diagnosis at birth agreed to participate; 3 infants had severe CHD, and 8 of the 9 families who declined to participate had infants with severe lesions.
Parents completed the Brief Symptom Inventory (BSI), which asse…