Most women undergoing BRCA testing do not receive counseling from a genetics clinician.
Testing for BRCA mutations is readily available in the community, and patient awareness of “genetic testing” to determine susceptibility for cancer is increasing. However, the knowledge base to adequately counsel patients regarding the implications of BRCA testing is neither consistent nor uniform across medical specialties.
To better understand the experience of patients undergoing BRCA testing in the community, the American BRCA Outcomes and Utilization of Testing (ABOUT) study was undertaken to analyze data from women who had BRCA testing ordered by their clinicians. More than 11,000 women who had been referred for testing were sent questionnaires concerning their BRCA1 and BRCA2 knowledge, understanding of information prior to testing, a…
Reviewing Author
DisclosuresConsultant/Advisory BoardLilly; AstraZeneca; Gilead
Grant/Research SupportBreast Cancer Research Foundation
Editorial BoardsClinical Breast Cancer; Oncology; Annals of Surgery; Breast Cancer Research and Treatment
Leadership Positions in Professional SocietiesNational Comprehensive Cancer Network (Chair, Breast Cancer Panel); American Board of Internal Medicine (Medical Oncology Board)
DisclosuresConsultant/Advisory BoardLilly; AstraZeneca; Gilead
Grant/Research SupportBreast Cancer Research Foundation
Editorial BoardsClinical Breast Cancer; Oncology; Annals of Surgery; Breast Cancer Research and Treatment
Leadership Positions in Professional SocietiesNational Comprehensive Cancer Network (Chair, Breast Cancer Panel); American Board of Internal Medicine (Medical Oncology Board)