Monitoring ALS Patients with Digital Tools

Smartphone-based tracking of ALS patients is similar to clinic-based assessments but can be done more frequently.

This proof-of-concept study was aimed at determining how smartphone-derived digital data collected outside the clinic compared to routine clinic assessment of patients with amyotrophic lateral sclerosis (ALS). In this single-center pilot study of 23 patients, the authors focused on collecting data particularly relevant to ALS trials, such as the revised ALS Functional Rating Scale (ALSFRS-R). Routine clinic-based data were collected every 3 months alongside digital data, including patient surveys (ALSFRS-R) collected weekly and voice recordings collected twice weekly to assess speech quality. The researchers collected additional data to be assessed in a future study, including cough recording to assess cough quality, smartphone communicatio…

Reviewing Author

Adam B. Cohen, MD

Monitoring ALS Patients with Digital Tools

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Reviewing Author