Tracking the Symptoms of Narcolepsy Type 1: The Pediatric Narcolepsy Severity Scale

The pediatric Narcolepsy Severity Scale may be useful in tracking key symptoms of narcolepsy type 1 in those aged 10 to 18 years.

The five key symptoms of narcolepsy type 1 (NT1) are excessive daytime sleepiness, cataplexy, sleep paralysis, hypnopompic/hypnagogic hallucinations, and disrupted nighttime sleep (DNS). Adapted from the adult Narcolepsy Severity Scale, the 14-item pediatric Narcolepsy Severity Scale (NSS-P) quantifies the frequency, severity, and consequences of the five key NT1 symptoms based on a 4- or 6-point Likert scale, with higher scores indicating more-severe disease (mild: 0–14; moderate: 15–28; severe: 29–42; very severe: 43–54). These authors analyzed the psychometric properties, validity, reliability, and responsiveness to treatment of the NSS-P in children and adolescents aged 10 to 18 years with NT1 from two centers.

A total of 160 participant…

Reviewing Author

Jennifer Rose V. Molano, MD

Disclosures

Grant/Research SupportNational Center for Advancing Translational Science – Cincinnati Center for Clinical and Translational Science and Training

Editorial BoardsBrain & Life

Jennifer Rose V. Molano, MD

Disclosures

Grant/Research SupportNational Center for Advancing Translational Science – Cincinnati Center for Clinical and Translational Science and Training

Editorial BoardsBrain & Life

Tracking the Symptoms of Narcolepsy Type 1: The Pediatric Narcolepsy Severity Scale

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Reviewing Author